PARKINSON’S DISEASE RESOURCES
Whether you have just received your Parkinson’s Disease diagnosis or have had your diagnosed for fifteen years one of your best tools to fight back against the disease is to stay informed. This page will help provide you with connections to the many resources we have recommended to our clients to help keep them informed and supported in their journey with Parkinson’s.
If you have recently been diagnosed with Parkinson’s Disease please don’t hesitate to reach out to our team of physical, occupational, and speech therapist who specialize in treating people with PD.
LSVT BIG EXERCISE AND LSVT LOUD RESOURCES:
Below are links to our YouTube Playlists for LSVT BIG exercises and LSVT LOUD resources. These include the full standard and modified exercise programs for our clients who have been trained in LSVT BIG so that you can follow along with use while you do your daily exercises. Our LSVT LOUD playlist is a great way to practice your LOUD homework.
BOOKS:
The Parkinson’s Primer by John Vine – This book is a great resource and tool for people with Parkinson’s AND their family members. The book is full of information, personal stories, coping strategies and more. John and his wife set out to write the book with the thought in mind of telling others what they wished they had known when they first received the diagnosis. It is available through several bookstores and online.
PODCASTS:
If you have never listened to a podcast, they are like short radio shows. You can download them and listen on your phone/iPad or listen online.
When Life Gives You Parkinson's. Started in 2017 by Canadian broadcaster, Larry Gifford. Larry was diagnosed with Early Onset Parkinson’s at the age of 48. His response to his diagnosis was to create this podcast. Larry opens up his life as a person with Parkinson’s and shares his experiences, frustrations, and concerns with living with PD. We also love that Larry ends every podcast with his wife as they explore the effects of Parkinson’s on her as a caregiver. We recommend starting at the beginning with the first podcast (2017) to get the best flow but if you just want to try one we highly recommend Episode 14: Exercise is a Real Prescription for Parkinson’s
Substantial Matters: Life and Science of Parkinson’s. “Host Dan Keller, PhD, interviews Parkinson’s experts to highlight the treatments and techniques that can help you live a better life now, as well as the research that can bring a better tomorrow. Episodes focus on a range of topics relevant to your daily life, including new levodopa delivery methods, exercise, clinical trials, nutrition and more!” Bonus with this podcast is there are several presented in Spanish. Substantial Matters Podcast
SUPPORT ORGANIZATIONS AND GROUPS:
The Parkinson Foundation of the National Capital Area (PFNCA) is a wonderful local organization that provides resources, classes, seminars, and conferences for people with Parkinson’s and their families. We have been long time supporters of this tremendous organization and recommend joining.